Thursday, October 8, 2015

Finally ins approved the increased dose of IT herceptin and I got it yesterday! We' ll see if it helps! Then last night I had a repeat brain MRI - which either it's still just swelling from the radiation or bigger tumors consequently I just had one 3 weeks ago and to the docs wasn't so bad - we'll see... I read the results myself today and I can't tell- looks like some is worse with swelling but some better- the doctor will call with what's next!

Thanks to my good friend Leann.damico for lending me a 4 point cane! And Aunt Kathy for lending Me a scooter for Disney!  I wouldn't be able to get around if not for Jason and my parents so I'm so grateful! I also so appreciate my doctors who really care about me and then of course all of you! My work is incredible and so supportive - I'm so very lucky and appreciative.

My favorite song/ "Somewhere Over The Rainbow" lyrics JEWEL LYRICS
Play "Somewhere Over The Rainbow"
"Somewhere Over The Rainbow"

Somewhere over the rainbow
Way up high
There's a land that I heard of
Once in a lullaby

Somewhere over that rainbow
All skies are blue, oh
And where dreams
That you dare to dream
Really do come true

Someday I'll wish upon a star
And wake up where the clouds are far behind me
And troubles melt like lemon drops
Way above the chimney tops
That's where you'll find me

Somewhere over the rainbow
Bluebirds fly, oh
If birds can fly over the rainbow
Why, then why can't I?

Someday I'll wake and rub my eyes
And in that land beyond the skies
You'll find me
I'll be a laughing daffodil
And leave the silly cares that
Fill my mind behind me

Somewhere over that rainbow
Bluebirds fly
If birds can fly over the rainbow
Why, then why can't I?

If happy little bluebirds fly
Beyond the rainbow
Why, oh why can't I?

Thursday, October 1, 2015

Getting back on balance...

So this last week I've been so dizzy and off balance, literally, it's unnerving to me. I need help to walk to the car, I fell 4 times, not bad falls but enough to startle me and Jason, thank Goodness the kids did not see, but I think Tom's onto me. I'm best just sitting up or laying in bed. And I'm so hungry again. Dr. Glass wants to increase my IT hereptin but the ins. company is taking forever to approve it, apparently I'm at the top dose. So we're just waiting. He did give me a referral for Physical Therapy for a cane... does anyone know of a good place around me? Problem is I have an HMO Keystone Health Plan East plan and I think I'm capitative to Magee.

So I feel stuck inside but at least I can work on the computer for a little while..... I'm going to do what I've been doing, keep swimming and see where this goes... hopefully I start to feel better, I don't like being so dependent!

Some of the quotes that give me strength:

"Live life as if everything is rigged in your favor". rumi

"Life is too ironic to fully understand. It takes sadness to know what happiness is. Noise to appreciate silence and absence to value presence".